Wednesday, January 21, 2009

New Room

Late this afternoon, we moved to the floor. For those of you not in-the-know, "the floor" happens to have such luxurious accouterments as bathrooms inside the room, actual darkening of the area when lights are turned off, near-silence (on an objective scale, noise levels probably rank slightly above a busy youth hostel in Amsterdam—but compared to the PICU, it's like sleeping in a sound booth); and most of all, we are afforded a smidge of general privacy.

This would all be great stuff if it weren't overshadowed by the fact that Shane had a pretty junky day. He's just not himself (VERY understandably so), but it's just so hard for us to see him so...off. Kylee put it best when we were walking down to the cafeteria (TCH calls it a "Fresh Market"...is it in a hospital? Check. Is food purchased and consumed there? Check. Then it's a cafeteria. Good food—but still a cafeteria); Ky said "I miss my kids," which might seem an odd statement given that we've been virtually sutured to one of 'em for a week straight.

But we haven't been with Shane. We haven't been with reckless abandon, untethered joy and stubborn wit. We've been with a kid who wasn't built for this. We've been with adrenelin, panic, nurses, doctors, syringes and sorrow. We have not been with Shaney.

I miss him, too.

And Ben.

And Casey.

And Kylee.

11 comments:

  1. Aw Buddy, I soooo feel for you... I miss all you guys. Love you tons, Dad

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  2. Chris...
    Please know that we are praying for your sweet little Shane AND for his AMAZING parents. I pray that God will continue to bless you with strength and comfort as you go through each new day...because only He can.
    With love, Les (Gunn) Cates
    (and Tim and the Girls: Ruby, Layla Jade and Sadie)

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  3. This is such a tough time for sure... May God's peace enter your hearts and comfort be with you like a warm blanket today. There's a space in your heart where the boys are missing in your lives and that, for sure, hurts so much... We are "there" for you as you are "there" for Shaney. May each moment bring Shaney closer to being Shaney... I love you so much

    mom

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  4. You guys hang in there. This phase is hard because you are in an in-between place. The adrenaline of "what's wrong and what are they going to do" is replaced with waiting - waiting for Shane to catch up with himself, waiting to go home, waiting to be all together again. You are so tired. Try to relax today and just let the time pass. Try to remember "a time for every purpose." I'll pray today for peace and patience and calm for you. It's hardest when the finish line is in site but you're crawling, not running. You'll get there- we're all with you..
    Love, Lori

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  5. This WILL be over and behind you guys.
    And you will have your family back to its rambunctious, raucous, bumblejoyful self.
    Hang on tight guys, to the One that has you close to His heart.
    I love you so much.
    Kel

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  6. My heart hurts for all of you. Your post made me cry. I'm so sorry you guys. Press in to Him!
    My boys...Lane keeps asking about Shane. He's very worried and said he wants to see him so he can be his uncle. (step-uncle,kinda sorta) He's very proud of that title and needs to put it into play. Cole wants to come to CO so he can play with Ben & Casey. We are ALL here for you!

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  7. Hi Chris and family,

    Laura from California, now a Montana girl.
    Glad to hear your on the floor and not in ICU.
    From experience, the floor is a much better place because that means he is one more step closer to home and you all being together once again. I know it is hard but this too will pass.
    When our little Joe was in ICU with heart failure, There were some kids that NEVER made it to "the floor." I saw the "the floor" in a differnt light. It was a sigh of relief that the "hard" part was over. That the Lord spared his life and now for the healing part to continue as he rested. As Shaney rests, you also rest, rest in the Lord and his great Mercy as He spared your sons life!
    Keep the faith!

    Laura Hauser

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  8. I can't even imagine how hard this has been for you! I'm praying that this will all be over soon and you will be able to thank god for bringing you all through this experience. Remember that God doesn't give you more than you can handle. Try to enjoy the relative peace and quiet and getting to spend time with Shaney, as he continues to become more like himself. Love you all!

    Katie

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  9. i ditto what Laura said.
    amen to that.

    i love you guys!! see you in a little bit.

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  10. Hang in there and hang on to His hand. Catch your breath and rest as much as you can. Prayers continuing.

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  11. I'm so glad that Shane is out of ICU. It has been a week and I'm sure it feels like a year or more to you all. I hope he can go home soon but you want him to be well enough to be there! I hope the other boys are doing okay but I know you are all missing each other. We are still all praying for you and love you very much. It has helped us all to read your blog and you have both done such a good job writing. we send kisses.

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